Many thanks to Regan Foster of The Pueblo Chieftain for so thoughtfully and skillfully presenting our ongoing struggle in trying to get Harrison some behavioral help. It is truly the story of a healthcare and mental-health system that is entirely broken and does not serve those in need.
Regan’s story will be Exhibit A for our appointment with an administrative law judge on March 21 to appeal a decision by the state to deny Harrison a Children’s Extended Services (CES) waiver for Medicaid. He was denied basically because his sleep habits, though not great, are not entirely horrible. Even if our appeal is upheld, the victory would be meaningless, as CES will not cover behavioral services beyond June.
Meanwhile, our insurance company, Cigna, after first denying that they cover ABA therapy in 2017 (and also erroneously denying we ever called), has changed its policy as of Jan. 1. Now they do “cover” behavioral therapy — with a $3,000 deductible and a 30 percent co-pay — which is the same as not having insurance at all except that we’re paying for this privilege.
As a side note it’s difficult for me to hear myself saying “But he’s never hurt anybody” when I know he left me with a nearly paralyzed arm and shoulder for about two months in 2013-14, and has nearly knocked me out with head-butts. I also have seen the bruises of others who love him, including Mary, and his teachers and aides, so I must have intended something else when I said that. Maybe he’s never “intentionally” hurt anybody would be more accurate.
Most of you know I’ve been writing extensively about this topic of autism parenting for years in my columns, blog, books and on Facebook, but it was fun to hand this ball off to Regan and see someone else’s perspective. GO READ it here.