Maladjusted autism research syndrome

February 17, 2015

A horse is a horse, of course, of course

Last week I received from several friends a link to a story out of UC Davis headlined Newborn horses give clues to autism.” The link to the article also began appearing on social media news feeds.

Harrisonriding

Harrison riding a short-eared equine at Adams Camp.

I’m not one to overly anthropomorphize, but I’m always interested in any connection between autism and the animal world, so I clicked right on over. And there I read about researchers asserting a connection between Maladjusted Foal Syndrome and autism. I hadn’t read too far when I began to think, “This is just all wrong.”

First of all, these researchers are comparing a condition that is apparent at birth in a species that must walk within moments of being born, to an entirely different condition not apparent at birth in a completely different species in which the young do not walk until they are several months old.

This seems like comparing apples and oranges . . . to peaches and mangos.

In fact many people feel autism develops in humans much later than birth. Despite repeated “scientific” reassurances from the medical establishment and the government that vaccines do not cause autism, about half the population still believes they may play some role in its development. Many leading experts, including Temple Grandin, say the possible role of vaccines in autism warrants closer investigation. Personally, I believe the cause of autism to be rooted in some perfect storm combination of genetics, environmental triggers and multi-dose vaccinations.

Nevertheless, I read further, getting to this quote:

“There are thousands of potential causes for autism, but the one thing that all autistic children have in common is that they are detached,” said Isaac Pessah, a professor of molecular biosciences at the UC Davis School of Veterinary Medicine and a faculty member of the UC Davis MIND Institute.

Really?

Now this really sort of annoyed me, not only because it simply isn’t true, but also because quotes like this help perpetuate a stereotype. Autism affects many different children in many different ways, and detachment is not always present. Prof. Messah should meet my son Harrison. He’s not detached. And neither are many other kids on the spectrum. Autism is so much more complicated than that.

I wrote to Pat Bailey, the author of the article, and stated my concerns. I received a nice note back saying, “When Dr. Pessah used the term ‘detached,’ he did so with the full realization that it applies to a really broad spectrum, ranging from very, very slight to profound. And he certainly didn’t intend any disrespect . . .” She also mentioned that the core of this research moving forward will center on understanding neurosteroid levels in horses at birth.

I was not so much offended by the quote as I was struck by the apparent lack of understanding of autism. And, while there is research showing autistic humans displaying dysregulation of neurosteroids, there’s no evidence this has anything to do with anything that occurs at the time of birth. So once again, this horse-human connection is nebulous at best.

An MIT researcher recently predicted that at current rates half of all kids will be autistic by 2025. I’ve worked around equines — horses and donkeys — for 30 years and had never even heard of maladjusted foal syndrome. I appreciate researchers looking for clues to the autism epidemic but this really seems like a case of over-reaching to me. 

What we really need is more understanding and honesty about the real causes of autism, and also how to best help autistic people work with their behavioral challenges and reach their full human potentials. That’s where I see research into connections between animals and autistic kids to be most beneficial.

Check out my new book, Full Tilt Boogie — A journey into autism, fatherhood, and an epic test of man and beast now available on amazon.

Morning splendor

February 5, 2015

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Full Tilt Boogie Slideshow

January 14, 2015

I figure if movies can have trailers, then books can too.

http://youtu.be/cKO2tItkuv8

December 15, 2014

FTBad

Pinning the ‘tale’ on a donkey

December 2, 2014

For sure I am not the first storyteller to pin the “tale” on a donkey.

copperburro

“Jack the Burro” by Frank Seckler at Paul’s Western Wear in Taos, New Mexico.

Robert Louis Stevenson did it in the 1800s with Travels with a Donkey in the Cévennes. Zane Grey did it with Tappan’s Burro. More recently Tim Moore wrote Travels with My Donkey and Andy Merrifeld penned The Wisdom of Donkeys: Finding Tranquility in a Chaotic World.

While donkeys played central roles in these books, each is about something more than the donkeys themselves. Likewise, with Full Tilt Boogie: A journey into autism, fatherhood, and an epic test of man and beast, I have framed my story with the Rocky Mountains as the backdrop and the gritty sport of pack-burro racing as a theme.

But Full Tilt Boogie is really about my challenges parenting my autistic son, Harrison. It is a story of determination, love and perseverance in the face of adversity.

The book is 224 pages and includes several color photographs. It is available in both electronic form and paperback.

Pay what you want ebook

To get an ebook (pdf) that you can read on your kindle, iPad or Nook, simply send an email to jackassontherun@gmail.com and I will send it to you! You choose the price! There’s a button inside the book that will take you to a place you can easily pay for it online.

PaperbackFTBcover200

The paperback also is available directly from me for $20, including shipping. You can either “send money” using paypal to jackassontherun@gmail.com or send a check to me at 307 Centennial Dr., Westcliffe, CO 81252. Of course, send along your address so I know where to mail it.

If you prefer, Full Tilt Boogie is also available on amazon.

The book also is available at the Book Haven in Salida.

Don Con giving away music to fund new album

November 30, 2014

https://www.kickstarter.com/projects/1685076171/new-don-conoscenti-cd-making-music-that-matters


Taos musician Don Conoscenti, well known in Central Colorado music circles and a former San Luis Valley resident, has launched a Kickstarter campaign to fund production of a new music album.
As incentive for the campaign, Don Con is giving away all of his previous music — about 10 albums — as a free music download through Dec. 31. Donations of any amount are welcome.
Known nationally for his song “The Other Side,” which became popular after the 9/11 terror attacks, and regionally for his song “Beautiful Valley” about the SLV, Conocenti’s music explores the spiritual nature of life in the mountains and deserts of Colorado and Northern New Mexico.
For more information about the music and to donate to the kickstarter program, visit www.doncon.com.

A visit to see the GEMS burros

November 7, 2014

GEMSdonks2

Finally made the trip (and it was a trip!) out to the Great Escapes Mustang Sanctuary (GEMS) where my friend Kim Zamudio is the trainer in chief and is working with wild horses and wild burros.

The sanctuary is out northeast of Kiowa.

Kimdonks

Kim and some of the donks she’s trained at GEMS.

Kim is an official trainer with the Platero Project, launched by the U.S. Bureau of Land Management in an effort to place more wild burros captured off Western rangelands into adoptive homes. She is able to take animals directly from the BLM, train them, then offer them for adoption.

There are as many as 1,300 wild donkeys that have been removed from public lands by the BLM and are being held in captivity.

Currently at GEMS 10 of these formerly feral burros are available for adoption. Kim has them trained to various degrees. Many of them are halter-trained and broke to carry pack saddles. These are about as nice a bunch of donkeys as I’ve seen.

People often ask me where they can get a burro. If you’re considering an animal for packing, pack-burro racing, a guard or companion donk, or a pet, I would encourage your to get in contact with GEMS. Not only are these burros gentled and trained, the adoption fee is extremely reasonable.

The sanctuary also has 29 mustangs, and serves as a center for education and awareness about burros and mustangs. Tours are available and donations are appreciated. Check out their website at http://greatescapesanctuary.org/.

A season through the classroom of time

November 1, 2014

My recent column in Colorado Central magazine

http://cozine.com/2014-november/season-classroom-time/

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‘Full Tilt Boogie’ available as ebook

October 26, 2014

FTBcover2 copy

My new book, Full Tilt Boogie — A journey into autism, fatherhood, and an epic test of man and beast is now available as an ebook directly from me. This ebook is a PDF that can be read on most tablets or your computer.

Full Tilt Boogie is a story of endurance and perseverance in the face of adversity, and is filled with parallels and metaphors for life. The book is organized as a series of vignettes that weave together to tell the story of how I set out at the age of 53 with a jenny donkey named Full Tilt Boogie to win a seventh World Championship in one of the planet’s most obscure and difficult endurance sports, while also struggling with the challenges of raising my autistic son Harrison, financial hardships, and aging.

To get a copy simply email your email address to me at jackassontherun@gmail.com. The book is “pay what you want” — there is a button on the copyright page and on the back cover directing you to an online payment form that takes Paypal or credit cards.

The ebook is also being published by Vook, and will soon be available on all major epublishing channels — Amazon, iTunes, Barnes and Nobel and others.

Print copies of Full Tilt Boogie will be available from me in the near future, and several signing events are in the works. Stay tuned for details.

This is an exciting time to be a writer, with so many ways to get your work out there, and also to get paid for it. I thank my readers for being a part of this journey.

“Inspiring, thoughtful, humorous, pensive, honest…a must-read for parents, athletes, ranchers, farmers, animal lovers. Without question, four hooves up!” Nancy H., Colorado Springs

“In two evenings I’ve experienced more than every human emotion; loved this book , what a great job you’ve done. God bless you all.” — Chuck L., Westcliffe

Words and Pictures

October 7, 2014

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“Nearly everything we are taught is false except how to read.” So says poet Jim Harrison, who apparently has an ax to grind.

“A picture paints a thousand words.” So says Frederick R. Barnard, in Printer’s Ink, a national trade magazine for advertising.

Barnard also had an ax to grind, but then that magazine went out of business.

Ancient peoples wrote in pictures painted on rocks, a form of expression which is real and lasting. Later people learned to chisel words into rocks.

Then came paper and ink.

Now it’s bits and screens, perhaps not as enduring as rock or paper.

Temple Grandin says language gets in the way of visual thinking, that words tend to cloud some ways of thinking. What does this all mean in the age of blogs, Facebook, Twitter, which all feed into short attention span, and in a world where success is determined by “Likes?”

In journalism school we were taught to write short. The “Five  Ws and the H” first. Everything else can be cut from the bottom. An editor once told me the end of the world could be written in 10 column inches.

It’s also struck me that poetry is a form of condensing words into a picture.

As both a photographer and writer I see that pictures get way more “likes” than the words. I’ve been conducting an unscientific study, which I think is unbiased since nobody’s paying to view or to read. The photos win hands-down, 5-1 or better.

There also have been instances when I have posted something to read and someone has “liked” it so fast I know there’s no way they could have actually read it.

If you write a book, however, longer is often believed to be better. But will anyone read it? Or will they skip through it looking for the pictures, those you’ve painted with words? Or go right to the ending?

In this new age of expression it’s up to those who create to figure out how best to get their ideas out there. Perhaps there’s something to be learned from poets.

Like those who painted rock walls before us, we have no other choice. We can blame electronic media but then did the ancients blame rock walls?


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